November 30, 2011 § 1 Comment
Running with friends. This has been really, really good!! The best part of my fall has been finding a group of girls to run with 2-3 times a week. Yesterday morning we ran at a trail near the Chattahoochee River… and it snowed!!! It was exhilarating. Here’s a pic of us running a few weeks ago at “The River.”
Oh yeah, and I guess I should mention that I’m just holding the stroller… that’s not my baby:-)
November 29, 2011 § 3 Comments
Driving home from choir practice, it struck me how many good things there are this side of heaven…. Texting with an old friend – that’s good. Christmas lights in the city square – that’s good too. Fiddles and banjo’s, cello’s and harps – they’re all good. Coming home to a loving husband – who stands strong when life is hard… that’s real good. Real. Real. Good.
Climbing in a warm bed when it’s cold and rainy outside. Hmmmm…. That sounds good :-)
November 28, 2011 § 1 Comment
I’ve been struggling with the amount of time and energy it takes me to care for Anne. It’s just so demanding and exhausting. But I think what I’ve really been struggling with is that caring for Anne reveals the sinfulness in my heart. It’s hard to care for Anne because I’m selfish and don’t want to sacrifice my time and energy to do for Anne what she can no longer do for herself. I struggle with self-pity, self-absorption and a lust for freedom to do what I WANT TO DO. But. If I can surrender – if I can dive deep into the life God has called me – a life of sacrifice and service – then my life will be full. I know this in my head…
“Whoever finds his life will lose it, and whoever loses his life for my sake will find it” Matthew 10:39.
Do you know how many times these words of Jesus are quoted in the gospels?? Six times. Twice in Matthew and Luke – and once in Mark and John. That’s a lot. Jesus expended much energy in teaching the disciples the lesson of self sacrifice. He knew it was the key to eternal fulfillment. He knows the end of the story… when this world will be turned up-side down and the first shall be last and the last shall be first. He knows. He knows.
I’m reminded of a scene from a novel written by Randy Alcorn. Randy has spent years studying eternal perspective, and back in the ’90’s he published, Deadline, a novel that weaved together much of his research and study. It is the story of three good friends who share different beliefs… an atheist, an agnostic and a believer -and they are in a serious automobile accident at the beginning of the story. The agnostic is the only survivor – but the novel continues to track all three men. As we follow the believer into heaven, the images are breathtaking. One scene in particular deeply impacted me… The believer who died left behind a son with Down Syndrome. And as we see the dad in heaven, he notices the most amazing music – coming from the largest and most beautiful orchestra and choir he had ever seen. It was HUGE – with countless numbers of people making music for Jesus – and he looked to the podium and saw the choir director – and he was surprised to see – a man – with Down Syndrome.
The last shall be first and the first shall be last. I consider it my greatest calling and honor on this earth to serve Jesus by serving my disabled daughter …But I struggle with self-sacrifice. I feel like Eustace in The Voyage of the Dawn Treader – as Aslan tears deep into his flesh to pull away the dragon’s skin. Just as Eustace was unable to peel the skin off himself, so Jesus has to help scrape away all of my selfishness… He does it because he loves me… and He knows the end of the story… and it’s good.
November 23, 2011 § 2 Comments
For Thanksgiving, I wanted to bring back a post I wrote a year ago… about the relentlessness of disability. Out of all I’ve written in these last 19+ months… this is one of my favorites. Thankfully, Anne has improved in the last year, but the heart of this post – both my own desperate heart and God’s ever-faithful heart – are still the same. Thank you for praying for us so faithfully! And Happy Thanksgiving!!!!
November 23, 2010
I’ve been a bit discouraged lately about something (that will probably sound strange) …Anne’s feet. I’ve always taken feet for granted. I find myself watching people’s feet now – how without even thinking about it, people can place their feet flat on the floor – without their ankles rolling or without going up on their tiptoes. I watch Kate jump – and I’m just amazed at the complexity of the brain – working the muscles and controlling the balance just so – to actually jump and land – solidly on flat feet.
Anne’s feet are always pointed in and down. She can’t stand without braces to hold her feet at a 90 degree angle and to keep her ankles from rolling. It takes a minimum of 10 minutes for me to stretch her feet to fit in her braces. I can’t just get Anne out of bed and stand her up – no, I have to carry her everywhere until I have the space in my day to stretch her feet out.
Why do I mention this? Well… Anne’s feet represent to me the relentlessness* of disability. It never ends. It’s constant and always with you.
As I was complaining about Anne’s feet to her (awesome) PT this morning, she gently reminded me to be thankful for Anne’s feet… “They’ve improved, Kathryn.” She’s right. I should be thankful :-)
But here’s what I’m really thankful for. I’m thankful that I have to care for a child with a disability. I’m thankful for the relentlessness of it – because it is a physical manifestation* of who I am and who I have always been – completely dependent on God.
Before the accident, I could deceive myself and live as though I didn’t need God – live as if I were not broken and completely dependent on God. We are ALL broken and in need of a saviour, but it’s so easy to live independently of God.
Grieving and caring for Anne is so challenging that rarely am I not aware of my need for Him. And you know what is amazing? Yes, Anne’s needs are relentless – they are always there, but God is more relentless. He pursues me. He comforts me. He comforts Anne. He gives us strength, joy and perseverance. He helps us stay in the moment and not be overwhelmed by the future. HE IS OUR EVERPRESENT HELP IN THIS TIME OF TROUBLE. He is near. He is my God. That is what I am thankful for!
Happy Thanksgiving :-) -kathryn
*A few thoughts from this post came from Stephanie Hubach’s book on disability called, Same Lake, Different Boat . I borrowed the word ‘relentless’ from Stephanie’s book. I really resonated with that word… Also the idea of disability being an outward representation of our inner brokenness came from Same Lake, Different Boat . Thanks Stephanie!
November 21, 2011 § 2 Comments
I’m so thankful that I spent the first 5 1/2 years of Anne’s life in blissful ignorance. She was a precious child. She still is… just different.
I’ve learned so much in the months following the accident. We must lose our life to gain it… in other words, self-sacrifice is the key to living life to its full. Because of God’s great love for us, he removes the idols of our hearts and gives us great suffering to force our gaze to Him alone. And in return, we find Him all that is good and satisfying… but at Great. Cost.
I look forward to heaven when all the loss and sacrifice will be turned upside down and there will only be fullness and joy. Yes, I look forward to that day!
November 18, 2011 § 6 Comments
I pulled a book off the shelf the other day to read to Kate and Anne. We hadn’t read it in a while…
The Crippled Lamb is a story about a lamb named, Joshua. He was born with a crippled leg, so when the shepherds prepare the herd to travel to the next field, he is left behind as he is unable to make the long journey. The shepherds leave Joshua with his only friend, Abigail the cow. Abigail is old – and wise – and as they make their way to the barn, she gently reminds Joshua, “God has a special place for those who feel left out.”
And then Anne started crying. My sweet Anne, my crippled Anne, identified with Joshua, the lamb.
The story continues as Joshua and Abigail are in the barn asleep and are awakened by a baby’s cry in the night. The baby is cold, and there is no blanket. Joshua offers to lie close to the baby to keep him warm… and then the shepherds appear, excited and proclaiming that this is the Savior, the new born King. And Joshua looks at the baby snuggled against his wool and realizes that this was his special purpose. If he hadn’t been born crippled, he would have missed the Savior.
And Anne cried. and cried. and cried. And I held her close and prayed… thanking God that He has a special place… for Anne.
November 16, 2011 § 6 Comments
I’m so excited I could just burst!!!!
At the beginning of the school year, Anne’s Kindergarten teacher sent home information about the “sight-word” challenge. On November 15th, each kid (that wanted to participate) would be tested on 50 sight words, and if the student could read 45/50 words, he/she could participate in a special after-school celebration.
Anne and I have been working diligently since August. It’s taken Anne months of hard work to master the list… And SHE DID IT!!!! She got 48/50 words and gets to participate in the after school celebration today! Isn’t that AMAZING and WONDERFUL! I’m so proud of her! WOO-HOO!!!!!
Thinking of how far she has come… Well it’s miraculous. May all the glory go to God “…who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen (Ephesians 3:20).