August 29, 2013 § 18 Comments
My friend, Josh, wrote a post on his blog that literally changed my life. His post: “An Open Letter to You from the Rest of World” is what inspired me to blog through the Bible in a year (and not quit in January)!
So now, he’s sponsoring a contest to encourage people to respond to his inspirational “Letter from the Rest of the World.” So I figured I’d give it a go… especially since I struggle daily with the tension between working to achieve my dreams and my home-bound responsibilities to care for Anne (my disabled daughter).
As I live in this constant tension, I’ve come to the realization that the best way to make an impact for good is not necessarily to write the next NY Times bestseller, but to surrender to the servant’s call of caring for Anne.
So here’s my response to “the rest of the world.” Let me know what you think!
It’s me…that skinny, freckle-faced girl with red hair and glasses. Yep… just me :)
Supposedly, I have something to offer you, but I feel much too small to offer your big-ole-self anything of significance…
You see, I spend my days taking care of my daughter who has a severe brain injury. What could I possibly offer you?
Every morning, as I walk into her room, she looks at me and asks, “Where are we going today, Mama?” And I say, “We are going to school,” but I think, “She wants me to show her the world.”
Then I carry her to the bathroom, and she sits and I sit, and we wait for her broken body to do what it has to do. And we wait, and she asks, “What are we doing today, Mama?” And I say, “Today’s a therapy day,” but I think, “We are going to persevere and never give up.”
And then I dress her and brush her teeth and put on her braces that straighten her crooked feet – so that she can stand. And as she stands, she stretches and lifts her one good hand to the sky – as if she might really touch it. And she looks up at me, and she smiles.
You might consider her lowly, broken and burdensome. But everyday I watch her bring light, beauty and grace to others.
Somehow she is able to fly in her brokenness. She not only flies, she soars, and she brings me along with her. She helps me laugh. She helps me love.
So this is what I offer to you, world…
Joy in the midst of hardship…
Rest in the midst of chaos,
And a Brokenness that breeds Strength.
I also offer you my disabled daughter, because she is priceless. I get to take care of her. And I am so grateful.
So if you happen to see us out and about, be sure to say, “Hi,” because my little girl gives the best hugs!
With Sincerity and Gratitude,
March 29, 2013 § 1 Comment
My sweet Anne.
She didn’t use her words. All she had to say was… “Please stop touching me.” But she stuck her pencil up the little girl’s nose instead. That poor sweet girl. Anne hurt her feelings – and then something remarkable happened.
Anne felt remorse.
She told me later, “I wish I hadn’t done it. I want to take it back. …And I want to give my brain injury back too.” Well, that last part wasn’t remorseful, but it was honest! …Sweet, precious Anne.
I’ve been struck by something powerful as I’ve been blogging through the bible… God always gives the sinner a chance to repent. And when true heart-repentance occurs, God is merciful.
Anne pleased God today. She was repentant. And that makes heaven rejoice!
In spite of her rash actions, it was a Good Friday for Anne. It has been for me too :)
Happy Good Friday, and Happy, Happy Easter!
February 24, 2013 § 6 Comments
I’m listening to the house… it’s quiet and I need to go to sleep. But I don’t want to, because something feels undone – unfinished… unsatisfied. I’m trying to write about Anne – but everything’s the same – she still has a brain injury.
When I pray for God to heal her – and I mean the “all-at-once” kind of healing… I know I’ve become desperate. God doesn’t work that way very often – because he cares more about our holiness than our happiness. There will be plenty of time for happiness in heaven – for now, it’s character building time.
But right now, in my unsettled, discontent heart… I just want to be happy. But the happiness is elusive.
When I feel this way – unsettled – like something’s unfinished, I know I’ve been grasping at distractions to fill the achiness. It’s a spiritual achiness - a longing… and silly entertaining distractions don’t cut it. I need the Savior. I need His touch. I need him to replace the discontent with contentment, the anxiety with peace.
I need to go to bed :) And pray, and wait, and hope that tomorrow will be better.
February 17, 2013 § 6 Comments
I’ve been a bit discouraged lately. I get so frustrated with myself when I’m discouraged – because it means that I’m relying more on my circumstances than on the word of God.
I think the main issue that has been discouraging me is Anne’s behavior. She’s just been rascally lately. Very contrary and sometimes… mean. There are a few reasons for this…
- Anne has frontal lobe damage. The frontal lobe controls executive function of the brain. This is the area that helps you use good judgment, promotes impulse control and helps you organize and plan. A healthy frontal lobe is crucial for independence. Anne does not have a healthy frontal lobe. It’s just extra hard for her to have self-control and make good decisions.
- Also, Anne’s self-awareness has improved. This is good. It is just more evidence that her brain is continuing to heal – but it also makes Anne sad and frustrated.
So, we keep plugging along day by day. When I get discouraged and overwhelmed, I have to force my eyes heavenward and focus on the present instead of worrying about the future.
Worry… I worry that I’m not doing enough to help her heal. I worry that I’m wasting precious opportunities to work with her because I’m tired. I worry. I worry.
What does Jesus say about worry? Oh yeah, it doesn’t help ;) And it’s also not of God. So, when I worry, I pray. That’s all I know to do right now!
January 28, 2013 § 8 Comments
Eric was reading to Anne from the “The Jesus Storybook Bible” again. Tonight’s story was from Revelation and it described heaven…
Anne got real excited and said, “When I go to heaven I want to be a doctor because if anybody that’s sick goes to heaven, when they get there, I’ll make them well again. I will take their temperature and tell them that they’re okay and that will make them soooooo happy.”
And then she changed her mind… “No, I want to be a teacher in heaven.”
But then she said something profound… “But Daddy, what I really want to be when I get to heaven is… ‘me.’ I want to be the ‘old Anne’ when I get to heaven. Daddy, will I get to be the ‘old Anne’ when I get to heaven?”
Wow. What would you say? This is an interesting question. One that I’ve thought about often. Yes, Anne will have a new body in heaven, but her spirit – or soul – will have the effects of having to live with a disability on this earth. Her character will be refined and strengthened from the hardship of having a brain injury. She will be beautiful. Absolutely beautiful.
But I wasn’t with Anne when she asked this question… Eric was. And I think his answer was perfect. Eric said,
No, you won’t be the “old Anne” in heaven. God makes all things new. You will be made new!
I like that. Don’t you?
January 14, 2013 § 1 Comment
Today, as Kate and I picked up Anne from school, Kate listened to Anne’s teacher give a good report on Anne’s day. Kate said,
Great job, Anne!!! …even with your brain injury!” Kate was sincerely proud of Anne – but Anne responded as she always does – truthfully with no filters…
I hate that brain injury… That stupid brain injury. I just want it to go away!
Anne has not lost her sass! Her spunk made me laugh :) I feel the same way as Anne. And you know what… I think God agrees and can’t wait for us to see Anne made whole in heaven!
“What no eye has seen, nor ear heard,
nor the heart of man imagined,
what God has prepared for those who love him” (1 Corinthians 2:9).
January 4, 2013 § 7 Comments
Anne is doing something amazing! She is starting to crawl.
I sound like a first-time mom talking about her 7 month old :-)
Seriously, last summer, when Anne was in Therasuit therapy, one of the exercises they did with Anne was to get her on all fours on the treadmill and physically move her hands and knees in a crawling position. Not only could she TOTALLY NOT do that movement on her own, but she screamed the entire time, seriously, she screamed.
Now, she can transition from side sit up to all fours (or I should say three’s – because her left arm cannot straighten all the way to the floor) and she can move her knees… right, left and then she falls. But she’s doing it!
I’m continually amazed at the complexity of the brain and how just how much damage Anne sustained. A healthy brain controls the muscles necessary for crawling without the person even “thinking” about it. It’s taken Anne over two years of healing to regain the (limited) use of some of those muscles. But the healing is still happening. And it’s exciting :-)
June 22, 2012 § 4 Comments
We are finished!!
I am very impressed with this program. Anne made significant progress in the three weeks. It really is amazing. She is VERY proud of herself.
Here are a few videos…
This is one of her walking with a cane. The therapist is moving the cane for Anne and lightly touching her left side. Anne is supporting all of her weight – the therapist is only giving her cues to help her balance.
This second video is a sample of some of the exercises she performed. Her left foot is attached to a pully with weight on the end. She started this exercise on day one with .5lbs of weight. Her left leg was extremely weak, but it has gotten stronger… she is pulling 4lbs in this video! It’s the last day, so we celebrated by letting her eat potato chips… her favorite food :-)
June 8, 2012 § 8 Comments
We’ve finished our first week. Anne has done amazingly well.
Specifically, she is less frightened and has more confidence; therefore, she is putting forth EFFORT! She turned to me several times today and asked, “How hard would you say I’m working? Just regular hard, or SUPER hard?” She is taking pride in her work ethic – this is something I haven’t seen before.
Here is a video taken while Anne is walking on the treadmill. There are no tears on day 5. She trusts that she will not fall, and she is having fun experimenting with the bungees. She is moving her right foot on her own. The therapist is just helping Anne with foot placement. Anne needs help with her left leg, but she is moving it much more than she did on Day 1. We are all proud of Anne (even Anne is proud of Anne – which is the best news yet!)
June 4, 2012 § 5 Comments
Anne had her first Therasuit session today. (She will have 15, four hour sessions over the next three weeks.) It was intense. I think she cried for over half the time… not because she was in pain – just because she was MAD. This therapy is hard work, and Anne does not like to work hard. That’s actually one of her biggest obstacles. She puts forth little effort, and when therapists demand more, Anne gets mad.
My prayer is that one day she will channel that stubbornness into getting better. In the interim, we’ll just have to listen to her cry. It’s sooooooooo good for her!
Here’s a rough video of Anne walking on the treadmill. She walked a total of 15 minutes with two short breaks. You can hear her crying :-) Don’t worry, she’s not in pain. It’s just her way of complaining!